He was full of good news including that we won't have to have Abeni's heart stopped for the procedure! She will have to be on the heart lung bypass machine but her heart will continue to beat, just her breathing will be stopped. The risk of complications for this type of bypass are much lower! He also explained his role in the procedure and went over Abeni's imaging from yesterday with us.
After our clinic visit we went downstairs where we grabbed a quick bite to eat. Abeni was being ohhh so sweet and kissing mommy and cuddling daddy while we ate.
Then we went and had her blood drawn for her pre-op blood work and for her typing in case she needs a transfusion. Dr. Manning is well respected for his work in keeping transfusion needs low in his patients so we are hopeful that she will need little if any blood. Abeni was upset when we got to the lab she knew what was coming but she was so brave. Then we had a visit to radiology for a chest X-ray just to be sure that baby girl hasn't developed any pneumonia. (All was clear).
After all of that we headed to the surgical department to have a physical, an EKG, and a meeting with anesthesiology. The cardiology department gave her a heart pillow and pen so that all of her providers can sign a pillow for her. Abeni was getting pretty tired by this point but still was ever so sweet and playing with all the providers that were looking her over. While we were waiting in surgery we got a call from the Ronald McDonald house. WE HAVE A ROOM! What a huge blessing this is. We will be right across the street from the hospital and we can stay here until the Dr's clear us to take angel girl HOME!
We headed back to the hotel packed up and came on down the Ronald McDonald house. We got settled let baby girl play and had dinner. (Which is brought in by volunteers, how amazing is that?!) then we bathed and dressed baby girl for her surgery. We laid her between us and kissed her and whispered how much we love her while she fell asleep.
Tomorrow we need to be at the hospital at 6:30 surgery time is 7:30. The procedure should take between 5-6 hours. We are hoping and praying for the surgeons to be guided in their decision making, and for Abeni to have the best outcome possible.
I'll update when I can.
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1 comments:
This post warmed my heart. There are such good, kind people in the world. (Like the lady at the park who asked to pray for Abeni. That is so beautiful!)
There is so much love in the medical field. It's amazing how there are Ronald McDonald Houses, volunteers all over every hospital, things like heart-shaped pillows. All of it is so supportive and shows the best of humanity.
Hugs and prayers!
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